En Pointe for Ava
With You Through the Journey
A Non-profit Organization helping those with Brain Tumors
En Pointe for Ava aims to raise awareness and support for children with brain tumors. Join us in the fight against this devastating disease and help make a difference in the lives of these young patients. Contact us to learn more about our brain tumor fundraising events and how you can get involved today.
As of June of 2024, En Pointe or Ava has provided financial support to 13 families from 13 different cities in the United States! Each family enrolled their child in a clinical trial at one of the locations with a yellow star.
Data for clinical site locations: clinicaltrials.gov
Where to Go
Travel to clinical sites cost families several thousand dollars every single month
If your child were diagnosed with a life-threatening brain tumor, can you afford to go?
Because it's necessary!
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Learn more about the journey to a cure
Dr. Michelle Monje from Stanford University
Hear our Story
Listen to our story on the Help and Hope Happen Here Podcast. In this podcast we talk about Ava's journey with DIPG and why we formed our nonprofit.
We're Here to Help
A parent's worst nightmare is to hear that their child has cancer. Yet worse than that is to learn there is no cure. We know you are worried, scared, overwhelmed, and tired. We also know that you are willing to do anything to help your child. You are determined and hopeful. Treatment plans and clinical trials can be confusing, with little direction, and not always conveniently accessible. We want to help.
Our Mission: to increase access to treatment for families with children diagnosed with life-threatening brain cancers.
What We Do
Our goal at En Pointe for Ava is to provide advocacy and financial support for children with life-threatening brain cancer who need to travel for treatment. Obstacles to treatment, like travel expenses and housing, shouldn't be a concern for families when the only thing parents should be worrying about is loving and caring for their child.
Our non-profit organization for brain tumors is an important part of our work at En Pointe for Ava. Through this campaign, we aim to educate the public about the impact of brain tumors on children and their families and to encourage greater support for research and treatment. We organize events, fundraisers, and community outreach activities to spread the word about our cause and raise awareness about the urgent need for improved brain tumor treatment options.
Collaboration
En Pointe for Ava is committed to collaborating with other nonprofits and foundations to end pediatric brain cancer.
Fundraising
With your support, we can make a difference in the fight against life-threatening brain cancer together.
Expert Team
All requests for support are reviewed by our En Pointe for Ava Medical Director.
Events & Updates
Ava's Story
"What happens when kids with cancer can't get treatment? ”
Ava H.Ava's Story
“I don't have anything to say because I am listening to what God is saying to me.”
Ava H., moments after hearing her diagnosisAva's Story
“I want to be the best version of myself.”
Ava H.
2nd Annual Golf Tournament
En Pointe Against Brain Cancer
Join us for a wonderful night of dance dedicatd to those who have or continue to fight cancer. There will be special guest dancers from City Ballet of San Diego along with stage management from Natalie Test of City Ballet of San Diego. Following the performance, a dessert reception and cash bar will be provided. We will have raffle prizes, En Pointe for Ava merchandise and much more!
100%
of available funds go to increasing access
16%
of all childhood cancers are found in the brain or CNS
4%
of federal funding goes to pediatric cancer research
<1%
funding for pediatric brain tumor research
70%
of rural patients travel > 2 hours for treatment
0%
of insurance support to families for travel and lodging
Make a Donation
Support pediatric brain cancer patients by donating today. Help us be there for them in their time of need.